who's got epilepsy on here?????????????

[wana s' charge stock vt]

just wondering whos got epilepsy on here??? i wana ask ya a few questions

edit- a few questions on how you prevent it, what brings it on, or anything you can take to help stop it without taking drugs/pills....

[wana s' charge stock vt]

thanks, but yes i know that,, its pretty obvious what will happen.- 2mins in the doc's office and-- here take these drugs/pills for the rest of ya life, it will stop it (and fry ya brain in the process)..........

was just hoping someone knew of a more natural remidy or knows what brings it on more for them, (alcohole,no sleep,crap food, ect), what not to do, ect.


lol, as for that flashing pic , i dont think that will help much


edit- sorry, sort of miss read your post... thought u said if IT bothers you..

[VT-565]

PMSL @ 'alcohole'

[nathanVY]

Julie that's just cruel lol.

I don't have epilepsy but I have had a seizure before due to a reaction to some medication that I was on.
When I had my seizure I was dehydrated and saw pretty orange colors everywhere before fainting and seizuring lol.
I would be doing research into just what meds he's prescribing you don't take everything a doctor says as truth, test it.

There's bound to be a number of different meds on the market with various differences, read into all of them and find out what's best for you. My dad has epilepsy i think he takes meds for it, I can find out what they are if you want?

[ClairBear]

If you are not happy taking prescription meds and prefer a more holistic approach then you may need to start researching holistic practioners in your area and have a consult.

[Philthy]

I dunno about any meds, but make sure your mates know what to do if you have a seizure.
A very close friend of mine has a stress related condition that can give her serious seizures if she doesn't take medication (and the medication she is on DOES work when she takes it). The first time I ever saw her have a seizure I was the only one around and it scared the shit out of me. Having been through 6 or 7 with her now it isn't so bad (most of the time), but it can't hurt to walk your close mates through what to do just in case

[illusionalvr]

which is generally move everything out of the way and let the person do the fish. well i think anyway.

[Kikki]

just wondering whos got epilepsy on here??? i wana ask ya a few questions

edit- a few questions on how you prevent it, what brings it on, or anything you can take to help stop it without taking drugs/pills....

You will work out your triggers, for my ex it was certain foods, he couldn't eat Hungry Jacks, I believe it was a preservative in the bun (?), lack of sleep is a big no no, make sure you always have at least 8-9 hours decent sleep a night minimum. He used to get a metallic taste in his mouth immediately before falling as well, notice, but not quite enough.

What brings it on? How do you mean? It's cause? Too much electricity almost in the brain and the body needs a way to release it, your neurologist will be able to explain it to you better, thats a simple explanation, otherwise your triggers could differ to anyone elses, these you will work out.

Again speak with your treating Dr in regards to medications, avoid Epilum, everyone I know of who has taken it has had major side effects, the ex has been taking Tegretol 400mg twice a day since 1999, which is slow release, no issues at all. Of course when taking any form of medication like that you need to avoid ALL alcohol, no illegal drugs and be cautious of what other medications you take (antihistamine is a no no unless carefully monitored). Tegretol (and other medications like it) for a normal person will make them have the "drunk" feeling, it slows down the waves of electricity in your brain, so you wont notice anything, except hopefully seizure free.

Honestly, we tried many types of natural products to stop it, in the end he would seize, so good luck if thats what your after.

Also make SURE you get in contact with your licensing office in regards to having a special conditions license. You keeping your license will depend on how often you seize BUT you have to tell them regardless, one guy seized a few years back, killed a mother and daughter, he is currently spending a minimum of 10 years in jail for failing to inform his licensing department.

The ex had his truck license taken off him, but since his seizures are under control and not very frequent, he's fine to drive a car and has to be re-accessed every 12 months.

IF your having alot of seizures per day, there is a reasonably new operation which involves removing part of the brain, but this is only used on those who have 30+ a day in most cases.

Obviously inform your close friends and family of it and those at your workplace, get them info on what to do, which is as above, move all objects from around you, try to place something soft under your head without moving you if they can (i have had to strip topless many times *rolls eyes*), DO NOT do anything else, do not try to hold/stop the seizure, and do not try to place anything in your mouth to stop you biting your tongue which is what people did years ago, tell them to check to see if you have any tooth damage or bitten your tongue after you have finished seizing and if you seize longer than 2 minutes call 000.

My ex used to say chuck him in the bath and put the washing in..... obviously don't do that haha!

Other things too like make sure if you go swimming etc that you have people with you.

[nathanVY]

+1 for some good advice philthy. definitely worth at least explaining that you're not demon possessed lol.

edit: I had to wait 12 months before I got my Ls because of my seizure and now I'm on the new red/green ps laws in vic

[wana s' charge stock vt]

You will work out your triggers, for my ex it was certain foods, he couldn't eat Hungry Jacks, I believe it was a preservative in the bun (?), lack of sleep is a big no no, make sure you always have at least 8-9 hours decent sleep a night minimum. He used to get a metallic taste in his mouth immediately before falling as well, notice, but not quite enough.

What brings it on? How do you mean? It's cause? Too much electricity almost in the brain and the body needs a way to release it, your neurologist will be able to explain it to you better, thats a simple explanation, otherwise your triggers could differ to anyone elses, these you will work out.

Again speak with your treating Dr in regards to medications, avoid Epilum, everyone I know of who has taken it has had major side effects, the ex has been taking Tegretol 400mg twice a day since 1999, which is slow release, no issues at all. Of course when taking any form of medication like that you need to avoid ALL alcohol, no illegal drugs and be cautious of what other medications you take (antihistamine is a no no unless carefully monitored). Tegretol (and other medications like it) for a normal person will make them have the "drunk" feeling, it slows down the waves of electricity in your brain, so you wont notice anything, except hopefully seizure free.

Honestly, we tried many types of natural products to stop it, in the end he would seize, so good luck if thats what your after.

Also make SURE you get in contact with your licensing office in regards to having a special conditions license. You keeping your license will depend on how often you seize BUT you have to tell them regardless, one guy seized a few years back, killed a mother and daughter, he is currently spending a minimum of 10 years in jail for failing to inform his licensing department.

The ex had his truck license taken off him, but since his seizures are under control and not very frequent, he's fine to drive a car and has to be re-accessed every 12 months.

IF your having alot of seizures per day, there is a reasonably new operation which involves removing part of the brain, but this is only used on those who have 30+ a day in most cases.

Obviously inform your close friends and family of it and those at your workplace, get them info on what to do, which is as above, move all objects from around you, try to place something soft under your head without moving you if they can (i have had to strip topless many times *rolls eyes*), DO NOT do anything else, do not try to hold/stop the seizure, and do not try to place anything in your mouth to stop you biting your tongue which is what people did years ago, tell them to check to see if you have any tooth damage or bitten your tongue after you have finished seizing and if you seize longer than 2 minutes call 000.

My ex used to say chuck him in the bath and put the washing in..... obviously don't do that haha!

Other things too like make sure if you go swimming etc that you have people with you.

didnt realise people had reply'd...

some good advice in there ^^^^ the hungry jacks is a bit of a spin out.. lol and putting things in ya mouth i know thats a no no, well my x dose, she thought she'd put her thumbs in my mouth to hold my tongue and i bit the shit out of em and wouldnt let em go lol was only for 5-10mins, drew a little bit of blood and she had massive dents in em for a few weeks..... having just 1 seizure absolutely floggs the living piss out of ya, whoever ^^^ that ya said was having 30 a day must be ruined.....

but anyway i've had test's done and if i eat and sleep there was no sign of it at all, had more test and if i didnt eat or sleep for 48 hrs there was a slight sign of it.... so its pretty obvious what i need to do... but just guna tak the pills and be a moody angry shit so i can drive safely as i know they work.. and get off em when i got the time to do fark all...

i've only had 3 in my life. one when 20 y.o while driving . one 3 months later from going cold turky off meds... and one when were i working like a bitch , not sleeping properly, or eating, just working 10- 15hrs a day, and drank a bit ..