Noeleter
Active Member
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- Aug 1, 2014
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Thought it might be good to have a thread where people can share their stories of their battles with illness and provide support to each other. As for my story I was relatively healthy until about 4 years ago when I was diagnosed with prostate cancer. I was scheduled to go in and have my prostate removed. In the meantime I got a hernia and went in to have it treated.
Whilst operating they found that I was suffering from a rare cancer called PMP. Only about 1 in a million people get this cancer. The cancer starts in the appendix but spreads throughout the body which mine had done. It is often described as the worst cancer you can have and is incurable. So went back in to have the appendix removed and clean up what they could. As this was much more serious that the prostate cancer and they thought I would not survive for long with the PMP, the prostate operation was put on hold.
When PMP gets advanced they undertake what is referred to as MOAS (mother of all surgeries). It is normally about an 18 hour operation where all affected organs are removed. The body cavity is then filled with hot chemo for several hours. Luckily my PMP has not got to this stage yet. I have to undergo 6 monthly surgeries where they remove what tumors and Mucin (jelly like substance that PMP produces) they can.
Early last year they decided that as I had survived the PMP for about 3 years they would proceed with the Prostate surgery. So far it seems to have been successful although I am getting blood in my urine so have to go back into hospital for more investigations.
Have to have another PMP operation in about a week so hopefully it has not progressed too far.
It has been a tough few years medically and financially but it does make you appreciate what is important in life. Would love to hear about other peoples battles.
Whilst operating they found that I was suffering from a rare cancer called PMP. Only about 1 in a million people get this cancer. The cancer starts in the appendix but spreads throughout the body which mine had done. It is often described as the worst cancer you can have and is incurable. So went back in to have the appendix removed and clean up what they could. As this was much more serious that the prostate cancer and they thought I would not survive for long with the PMP, the prostate operation was put on hold.
When PMP gets advanced they undertake what is referred to as MOAS (mother of all surgeries). It is normally about an 18 hour operation where all affected organs are removed. The body cavity is then filled with hot chemo for several hours. Luckily my PMP has not got to this stage yet. I have to undergo 6 monthly surgeries where they remove what tumors and Mucin (jelly like substance that PMP produces) they can.
Early last year they decided that as I had survived the PMP for about 3 years they would proceed with the Prostate surgery. So far it seems to have been successful although I am getting blood in my urine so have to go back into hospital for more investigations.
Have to have another PMP operation in about a week so hopefully it has not progressed too far.
It has been a tough few years medically and financially but it does make you appreciate what is important in life. Would love to hear about other peoples battles.